Welcome to Team Narcolepsy, Supported by Harmony Biosciences!
Our team was created to unite individuals living with narcolepsy, their loved ones and advocates to show their collective strength by sharing their personal stories and experiences to raise funds to help advance research for rare diseases. Narcolepsy occurs in 1 in every 2,000 people in the US and it is believed that only 25% of people with narcolepsy are diagnosed and receiving treatment.
We are very proud to announce that Harmony Biosciences will also be donating $7,000 towards narcolepsy related causes in support of Team Narcolepsy. Harmony Biosciences’ primary mission is to have a positive impact on the lives of those who are so often underserved. We believe it takes both scientific vision and tenacity to pursue new therapies that will have the potential to transform the lives of patients.
As part of Team Narcolepsy, your challenge is to join the rare disease community in running, jogging, biking or walking 7,000 miles between February 1st and February 28th, Rare Disease Day.
Supporting Team Narcolepsy is easy! To join the team, please click the ‘create your campaign’ button below. You can also make a donation or pledge to an existing campaign that has been established. After your campaign is launched, get out and start moving! Invite your family and friends to pledge a donation for every mile you log in February. Check your progress on the leaderboard and see how you and other teams compare!
Proceeds from the 7,000 Mile Rare Movement Challenge will benefit NORD, which is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. If you have any further questions, please reach out to Ross Martin at rmartin@rarediseases.org.