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John J's NORD 7,000 Mile Rare Movement: Team Narcolepsy

Proceeds benefit National Organization for Rare Disorders


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I’m participating in NORD’s 7,000 Mile Rare Movement!

Team Narcolepsy was created to unite individuals living with narcolepsy, their loved ones and advocates to show their collective strength by sharing their personal stories and experiences to raise funds to help advance research for rare diseases. Narcolepsy occurs in 1 in every 2,000 people in the US and it is believed that only 25% of people with narcolepsy are diagnosed and receiving treatment.

We are very proud to announce that Harmony Biosciences will also be donating $7,000 towards narcolepsy related causes in support of Team Narcolepsy. Harmony Biosciences’ primary mission is to have a positive impact on the lives of those who are so often underserved. We believe it takes both scientific vision and tenacity to pursue new therapies that will have the potential to transform the lives of patients.

As part of Team Narcolepsy, my challenge is to join the rare disease community in running, jogging, biking or walking 7,000 miles between February 1st and February 28th, Rare Disease Day.


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This campaign benefits

National Organization for Rare Disorders

Verified Charity

NORD is a 501(c)(3) nonprofit organization formed as a federation of voluntary health organizations dedicated to helping people with rare orphan diseases and assisting the organizations that serve them. We are committed to the identification, treatment and cure of rare disorders through programs of education, advocacy, research and service.

Contributions made to this campaign are tax-deductible.

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