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Kathleen's NORD 7,000 Mile Rare Movement: Team P.K.U. Matters Society

Proceeds benefit National Organization for Rare Disorders


Based on 146 miles, each worth $10.84

19 pledgers

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I’m participating in NORD’s 7,000 Mile Rare Movement!

This February, I am joining NORD’s Rare Movement Campaign to raise awareness for rare diseases. Together, participants aim to move a total of 7,000 miles of donor-supported movement by Rare Disease Day on February 28th. There are 7,000 known rare diseases, 95% of them have no treatment. My son has one of those rare disorders, and I am running for him and all of the wonderful families we have met while navigating life with PKU.

Help NORD continue to support the 30 million Americans affected by rare diseases through patient assistance and support programs, research grants, advocacy and educational initiatives.


2/1Day 16.10$66
2/2Day 26.20$67
2/3Day 35$54
2/4Day 48.80$95
2/5Day 52.20$24
2/6Day 66.40$69
2/7Day 74.56$49
2/8Day 85.90$64
2/9Day 94$43
2/10Day 106.70$73
2/11Day 1110.50$114
2/12Day 121.50$16
2/13Day 136.50$70
2/14Day 141$11
2/15Day 154.60$50
2/16Day 167.60$82
2/17Day 172.91$32
2/18Day 182.17$24
2/19Day 192$22
2/20Day 207.39$80
2/21Day 213.26$35
2/23Day 223$33
2/23Day 237.66$83
2/24Day 244.07$44
2/25Day 2511.60$126
2/26Day 262.26$25
2/27Day 277.50$81
2/28Day 284.85$53

This campaign benefits

National Organization for Rare Disorders

Verified Charity

NORD is a 501(c)(3) nonprofit organization formed as a federation of voluntary health organizations dedicated to helping people with rare orphan diseases and assisting the organizations that serve them. We are committed to the identification, treatment and cure of rare disorders through programs of education, advocacy, research and service.

Contributions made to this campaign are tax-deductible.

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