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Jackie's NORD 7,000 Mile Rare Movement: Team P.K.U. Matters Society

Proceeds benefit National Organization for Rare Disorders

Completed

Based on 138 miles, each worth $0.10

Ended
1 pledgers

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I’m participating in NORD’s 7,000 Mile Rare Movement!

My name is Jackie and this February, I am joining NORD’s Rare Movement Campaign to raise awareness for rare diseases. Together, participants aim to move a total of 7,000 miles of donor-supported movement by Rare Disease Day on February 28th. There are 7,000 known rare diseases, 95% of them have no treatment. Help NORD continue to support the 30 million Americans affected by rare diseases through patient assistance and support programs, research grants, advocacy and educational initiatives.

My best friend Angie has PKU and is Mrs. Kansas Plus America 2018. We've been friends for 20 plus years, I know how her PKU effects her day to day life. She has been there for me through everything and I've been there for her. I am honored to help her with the 7,000 Mile Rare Movement and be a part of the PKU Matters Society Team.

Schedule

DateNamemilesEarned
2/1Day 15.50$1
2/2Day 23$0
2/3Day 34.80$0
2/4Day 45.10$1
2/5Day 54.60$0
2/6Day 64.50$0
2/7Day 73.40$0
2/8Day 85$1
2/9Day 94.80$0
2/10Day 105.10$1
2/11Day 113.40$0
2/12Day 125.10$1
2/13Day 134.60$0
2/14Day 144.10$0
2/15Day 155.60$1
2/16Day 163.40$0
2/17Day 175.30$1
2/18Day 186$1
2/19Day 195.30$1
2/20Day 204.60$0
2/21Day 214.70$0
2/23Day 225.10$1
2/23Day 238.10$1
2/24Day 246.10$1
2/25Day 255.40$1
2/26Day 265.20$1
2/27Day 275.50$1
2/28Day 284.90$0

This campaign benefits

National Organization for Rare Disorders

Verified Charity

NORD is a 501(c)(3) nonprofit organization formed as a federation of voluntary health organizations dedicated to helping people with rare orphan diseases and assisting the organizations that serve them. We are committed to the identification, treatment and cure of rare disorders through programs of education, advocacy, research and service.

Contributions made to this campaign are tax-deductible.

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