Jackie's NORD 7,000 Mile Rare Movement: Team P.K.U. Matters Society
Proceeds benefit National Organization for Rare Disorders
I’m participating in NORD’s 7,000 Mile Rare Movement!
My name is Jackie and this February, I am joining NORD’s Rare Movement Campaign to raise awareness for rare diseases. Together, participants aim to move a total of 7,000 miles of donor-supported movement by Rare Disease Day on February 28th. There are 7,000 known rare diseases, 95% of them have no treatment. Help NORD continue to support the 30 million Americans affected by rare diseases through patient assistance and support programs, research grants, advocacy and educational initiatives.
My best friend Angie has PKU and is Mrs. Kansas Plus America 2018. We've been friends for 20 plus years, I know how her PKU effects her day to day life. She has been there for me through everything and I've been there for her. I am honored to help her with the 7,000 Mile Rare Movement and be a part of the PKU Matters Society Team.
Schedule
| Date | Name | miles | Earned |
|---|---|---|---|
| 2/1 | Day 1 | 5.50 | $1 |
| 2/2 | Day 2 | 3 | $0 |
| 2/3 | Day 3 | 4.80 | $0 |
| 2/4 | Day 4 | 5.10 | $1 |
| 2/5 | Day 5 | 4.60 | $0 |
| 2/6 | Day 6 | 4.50 | $0 |
| 2/7 | Day 7 | 3.40 | $0 |
| 2/8 | Day 8 | 5 | $1 |
| 2/9 | Day 9 | 4.80 | $0 |
| 2/10 | Day 10 | 5.10 | $1 |
| 2/11 | Day 11 | 3.40 | $0 |
| 2/12 | Day 12 | 5.10 | $1 |
| 2/13 | Day 13 | 4.60 | $0 |
| 2/14 | Day 14 | 4.10 | $0 |
| 2/15 | Day 15 | 5.60 | $1 |
| 2/16 | Day 16 | 3.40 | $0 |
| 2/17 | Day 17 | 5.30 | $1 |
| 2/18 | Day 18 | 6 | $1 |
| 2/19 | Day 19 | 5.30 | $1 |
| 2/20 | Day 20 | 4.60 | $0 |
| 2/21 | Day 21 | 4.70 | $0 |
| 2/23 | Day 22 | 5.10 | $1 |
| 2/23 | Day 23 | 8.10 | $1 |
| 2/24 | Day 24 | 6.10 | $1 |
| 2/25 | Day 25 | 5.40 | $1 |
| 2/26 | Day 26 | 5.20 | $1 |
| 2/27 | Day 27 | 5.50 | $1 |
| 2/28 | Day 28 | 4.90 | $0 |
This campaign benefits
National Organization for Rare Disorders
Verified Charity
NORD is a 501(c)(3) nonprofit organization formed as a federation of voluntary health organizations dedicated to helping people with rare orphan diseases and assisting the organizations that serve them. We are committed to the identification, treatment and cure of rare disorders through programs of education, advocacy, research and service.
Contributions made to this campaign are tax-deductible.
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