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Vicki Poole's NORD 7,000 Mile Rare Movement

Proceeds benefit National Organization for Rare Disorders


Based on 65 miles, each worth $1

1 pledgers

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I’m participating in NORD’s 7,000 Mile Rare Movement! This is near and dear to me because I have one of these rare diseases, Ideopathic Pulmonary Hypertension. I would love to have your assistance in raising funds for this movement to raise funds for treatments for these rare diseases! Thank you.

This February, I am joining NORD’s Rare Movement Campaign to raise awareness for rare diseases. Together, participants aim to move a total of 7,000 miles of donor-supported movement by Rare Disease Day on February 28th. There are 7,000 known rare diseases, 95% of them have no treatment. Help NORD continue to support the 30 million Americans affected by rare diseases through patient assistance and support programs, research grants, advocacy and educational initiatives.

[Optional: Add a link to your fitness tracker or app here.]


2/1Day 10-
2/2Day 20-
2/3Day 30-
2/4Day 40-
2/5Day 52$2
2/6Day 63$3
2/7Day 73$3
2/8Day 80-
2/9Day 92$2
2/10Day 104$4
2/11Day 112$2
2/12Day 123$3
2/13Day 134$4
2/14Day 142$2
2/15Day 153$3
2/16Day 163$3
2/17Day 174$4
2/18Day 183$3
2/19Day 192$2
2/20Day 202$2
2/21Day 214$4
2/23Day 222$2
2/23Day 235$5
2/24Day 242$2
2/25Day 252$2
2/26Day 262$2
2/27Day 273$3
2/28Day 283$3

This campaign benefits

National Organization for Rare Disorders

Verified Charity

NORD is a 501(c)(3) nonprofit organization formed as a federation of voluntary health organizations dedicated to helping people with rare orphan diseases and assisting the organizations that serve them. We are committed to the identification, treatment and cure of rare disorders through programs of education, advocacy, research and service.

Contributions made to this campaign are tax-deductible.

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