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Sandy's NORD 7,000 Mile Rare Movement: Team P.K.U. Matters Society

Proceeds benefit National Organization for Rare Disorders

Completed

Based on 70 miles, each worth $0.50

Ended
1 pledgers

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I’m participating in NORD’s 7,000 Mile Rare Movement!

My name is Sandy and this February, I am joining NORD’s Rare Movement Campaign to raise awareness for rare diseases. Together, participants aim to move a total of 7,000 miles of donor-supported movement by Rare Disease Day on February 28th. There are 7,000 known rare diseases, 95% of them have no treatment. Help NORD continue to support the 30 million Americans affected by rare diseases through patient assistance and support programs, research grants, advocacy and educational initiatives.

I am joining in support of my friend Angie, that has a rare disease called PKU. Phenylketonuria or PKU is a rare genetic disease or condition in which the patient has difficulty breaking down phenylalanine (Phe), an amino acid found in all natural protein. PKU affects approximately 350 babies born each year in the U.S. alone. That number increases phenomenally if you include PKU births worldwide .

My 60 miles, in 28 days may not sound like much, but I had both my hips replaced 2 years ago and I'm still getting back into the swing of things. I'm willing to my part, how ever little, to help advance treatments, cures and awareness for rare diseases.

Schedule

DateNamemilesEarned
2/1Day 13.21$2
2/2Day 23.21$2
2/3Day 33.21$2
2/4Day 43.21$2
2/5Day 53.21$2
2/6Day 63.21$2
2/7Day 73.21$2
2/8Day 84$2
2/9Day 92$1
2/10Day 101.17$1
2/11Day 113$2
2/12Day 122.80$1
2/13Day 132.80$1
2/14Day 142.80$1
2/15Day 152.80$1
2/16Day 162.80$1
2/17Day 171.66$1
2/18Day 181.11$1
2/19Day 191$1
2/20Day 201.17$1
2/21Day 211.61$1
2/23Day 221$1
2/23Day 232.50$1
2/24Day 243.21$2
2/25Day 252$1
2/26Day 263.21$2
2/27Day 273$2
2/28Day 281.66$1

This campaign benefits

National Organization for Rare Disorders

Verified Charity

NORD is a 501(c)(3) nonprofit organization formed as a federation of voluntary health organizations dedicated to helping people with rare orphan diseases and assisting the organizations that serve them. We are committed to the identification, treatment and cure of rare disorders through programs of education, advocacy, research and service.

Contributions made to this campaign are tax-deductible.

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