Debbie's NORD 7,000 Mile Rare Movement
Proceeds benefit National Organization for Rare Disorders
I'm participating in the NORD's Rare Movement Campaign!
At age 28, my sister was given less than 6 months to live when she was diagnosed with a rare, life-threatening heart and lung condition. Doctors told this mom of three young girls that she wouldn’t live to see her 30th birthday.
Because of NORD’s work in establishing the Orphan Drug Act in 1983 and because of their work in the early 1990s in supporting the first meeting of pulmonary hypertension patients, my sister is alive and on one of 14 therapies for this rare disease.
Join me in thanking NORD for saving Alex’s life!
This February, I am joining NORD’s Rare Movement Campaign to raise awareness for rare diseases. Together, participants aim to move a total of 7,000 miles of donor-supported movement by Rare Disease Day on February 28th. There are 7,000 known rare diseases, 95% of them have no treatment.
Help NORD continue to support the 30 million Americans affected by rare diseases through patient assistance and support programs, research grants, advocacy and educational initiatives.
[Optional: Add a link to your fitness tracker or app here.]
Schedule
| Date | Name | miles | Earned |
|---|---|---|---|
| 2/1 | Day 1 | 5.40 | $35 |
| 2/2 | Day 2 | 5.30 | $35 |
| 2/3 | Day 3 | 6.70 | $44 |
| 2/4 | Day 4 | 6.70 | $44 |
| 2/5 | Day 5 | 4 | $26 |
| 2/6 | Day 6 | 6.50 | $43 |
| 2/7 | Day 7 | 5.90 | $39 |
| 2/8 | Day 8 | 5.70 | $37 |
| 2/9 | Day 9 | 6.30 | $41 |
| 2/10 | Day 10 | 6 | $39 |
| 2/11 | Day 11 | 5 | $33 |
| 2/12 | Day 12 | 5.50 | $36 |
| 2/13 | Day 13 | 4 | $26 |
| 2/14 | Day 14 | 6.20 | $41 |
| 2/15 | Day 15 | 6.40 | $42 |
| 2/16 | Day 16 | 5.50 | $36 |
| 2/17 | Day 17 | 6.60 | $43 |
| 2/18 | Day 18 | 7 | $46 |
| 2/19 | Day 19 | 4.70 | $31 |
| 2/20 | Day 20 | 7.47 | $49 |
| 2/21 | Day 21 | 5.90 | $39 |
| 2/23 | Day 22 | 4 | $26 |
| 2/23 | Day 23 | 6.50 | $43 |
| 2/24 | Day 24 | 8.05 | $53 |
| 2/25 | Day 25 | 5.59 | $37 |
| 2/26 | Day 26 | 4.16 | $27 |
| 2/27 | Day 27 | 8.75 | $57 |
| 2/28 | Day 28 | 4.80 | $31 |
This campaign benefits
National Organization for Rare Disorders
Verified Charity
NORD is a 501(c)(3) nonprofit organization formed as a federation of voluntary health organizations dedicated to helping people with rare orphan diseases and assisting the organizations that serve them. We are committed to the identification, treatment and cure of rare disorders through programs of education, advocacy, research and service.
Contributions made to this campaign are tax-deductible.
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