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Debbie's NORD 7,000 Mile Rare Movement

Proceeds benefit National Organization for Rare Disorders

Completed

Based on 165 miles, each worth $6.54

Ended
20 pledgers

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I'm participating in the NORD's Rare Movement Campaign!

At age 28, my sister was given less than 6 months to live when she was diagnosed with a rare, life-threatening heart and lung condition. Doctors told this mom of three young girls that she wouldn’t live to see her 30th birthday.

Because of NORD’s work in establishing the Orphan Drug Act in 1983 and because of their work in the early 1990s in supporting the first meeting of pulmonary hypertension patients, my sister is alive and on one of 14 therapies for this rare disease.

Join me in thanking NORD for saving Alex’s life!

This February, I am joining NORD’s Rare Movement Campaign to raise awareness for rare diseases. Together, participants aim to move a total of 7,000 miles of donor-supported movement by Rare Disease Day on February 28th. There are 7,000 known rare diseases, 95% of them have no treatment.

Help NORD continue to support the 30 million Americans affected by rare diseases through patient assistance and support programs, research grants, advocacy and educational initiatives.

[Optional: Add a link to your fitness tracker or app here.]

Schedule

DateNamemilesEarned
2/1Day 15.40$35
2/2Day 25.30$35
2/3Day 36.70$44
2/4Day 46.70$44
2/5Day 54$26
2/6Day 66.50$43
2/7Day 75.90$39
2/8Day 85.70$37
2/9Day 96.30$41
2/10Day 106$39
2/11Day 115$33
2/12Day 125.50$36
2/13Day 134$26
2/14Day 146.20$41
2/15Day 156.40$42
2/16Day 165.50$36
2/17Day 176.60$43
2/18Day 187$46
2/19Day 194.70$31
2/20Day 207.47$49
2/21Day 215.90$39
2/23Day 224$26
2/23Day 236.50$43
2/24Day 248.05$53
2/25Day 255.59$37
2/26Day 264.16$27
2/27Day 278.75$57
2/28Day 284.80$31

This campaign benefits

National Organization for Rare Disorders

Verified Charity

NORD is a 501(c)(3) nonprofit organization formed as a federation of voluntary health organizations dedicated to helping people with rare orphan diseases and assisting the organizations that serve them. We are committed to the identification, treatment and cure of rare disorders through programs of education, advocacy, research and service.

Contributions made to this campaign are tax-deductible.

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