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Ciara's NORD 7,000 Mile Rare Movement: Rise Up for Rarity

Proceeds benefit National Organization for Rare Disorders

Completed

Based on 45 miles, each worth $5.54

Ended
6 pledgers

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I’m participating in NORD’s 7,000 Mile Rare Movement!

There are 7,000 rare diseases & disorders that combined affect 30 million Americans–THAT IS 1 in 10 of us. Statistically is is almost impossible for you not to know someone with a rare disease. Not only are these individuals dealing with their specific medical problems but people with rare diseases struggle to get a proper diagnosis, find information, and get treatment. It didn’t hit home for me until my best friend was hospitalized and I had never even heard of the diseases that she was diagnosed with before, virtually no one had. As if It wasn’t scary and hard enough that she was dealing with the health issues of rare diseases, she also had to endure the added difficulty due to the lack of awareness of her diseases in the general and medical community. Its hard to feel like there is no way to help someone you love or those in need but Raising awareness is where EVERYONE can greatly HELP people afflicted by rare disease.

SO, I am overly excited to announce that this February, I am joining NORD’s Rare Movement Campaign to raise awareness for rare diseases. Together, participants aim to move a total of 7,000 miles of donor-supported movement by Rare Disease Day on February 28th. There are 7,000 known rare diseases, 95% of them have no treatment. Help NORD continue to support the 30 million Americans affected by rare diseases through patient assistance and support programs, research grants, advocacy and educational initiatives.

Schedule

DateNamemilesEarned
2/1Day 12.10$12
2/2Day 23.30$18
2/3Day 34.60$25
2/4Day 41.40$8
2/5Day 51$6
2/6Day 62.20$12
2/7Day 72.60$14
2/8Day 81.60$9
2/9Day 91.10$6
2/10Day 101.30$7
2/11Day 111$6
2/12Day 121.40$8
2/13Day 131.30$7
2/14Day 141.40$8
2/15Day 151.60$9
2/16Day 162$11
2/17Day 171.04$6
2/18Day 180.50$3
2/19Day 191.04$6
2/20Day 201.80$10
2/21Day 211.10$6
2/23Day 220.52$3
2/23Day 231.60$9
2/24Day 241.30$7
2/25Day 250.62$3
2/26Day 261.35$7
2/27Day 272.76$15
2/28Day 281.62$9

This campaign benefits

National Organization for Rare Disorders

Verified Charity

NORD is a 501(c)(3) nonprofit organization formed as a federation of voluntary health organizations dedicated to helping people with rare orphan diseases and assisting the organizations that serve them. We are committed to the identification, treatment and cure of rare disorders through programs of education, advocacy, research and service.

Contributions made to this campaign are tax-deductible.

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