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Amber's NORD 7,000 Miles for MALS

Proceeds benefit National Organization for Rare Disorders


Based on 53 miles, each worth $6.52

5 pledgers

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I'm participating in the NORD's Rare Movement Campaign!

As the one year anniversary of my life-saving, life-altering surgery comes about, I’ve wondered to myself, “What can I do?” The answer is in NORD.

This February, I am joining NORD’s Rare Movement Campaign to raise awareness for rare diseases. Together, participants aim to move a total of 7,000 miles of donor-supported movement by Rare Disease Day on February 28th. There are 7,000 known rare diseases, 95% of them have no treatment. Help NORD continue to support the 30 million Americans affected by rare diseases through patient assistance and support programs, research grants, advocacy and educational initiatives.

To celebrate surviving the scariest and most difficult year of my life, I walk. I move, and I don’t ever take that for granted. We still seek answers- my life may be forever changed, but I’m alive, I can eat, and I can walk. So I celebrate.

Learn more about MALS here:…….

Follow my steps here:…


2/1Day 12.20$14
2/2Day 21.40$9
2/3Day 31.19$8
2/4Day 42.08$14
2/5Day 52.15$14
2/6Day 61.49$10
2/7Day 71.82$12
2/8Day 81.84$12
2/9Day 92.17$14
2/10Day 101$7
2/11Day 111$7
2/12Day 121.50$10
2/13Day 131.50$10
2/14Day 141.50$10
2/15Day 151.17$8
2/16Day 161.58$10
2/17Day 171.93$13
2/18Day 181.50$10
2/19Day 190.48$3
2/20Day 202.49$16
2/21Day 211.29$8
2/23Day 222.09$14
2/23Day 231.61$10
2/24Day 241.60$10
2/25Day 252.29$15
2/26Day 264.03$26
2/27Day 274.32$28
2/28Day 283.54$23

This campaign benefits

National Organization for Rare Disorders

Verified Charity

NORD is a 501(c)(3) nonprofit organization formed as a federation of voluntary health organizations dedicated to helping people with rare orphan diseases and assisting the organizations that serve them. We are committed to the identification, treatment and cure of rare disorders through programs of education, advocacy, research and service.

Contributions made to this campaign are tax-deductible.

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