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Racquel's NORD 7,000 Mile Rare Movement: Rise Up for Rarity

Proceeds benefit National Organization for Rare Disorders

Completed

Based on 217 miles, each worth $0.71

Ended
3 pledgers

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I’m participating in NORD’s 7,000 Mile Rare Movement for Racquel Rudolf!

As most of you know my friends are some of the most important people in my life, and when one of them is thrown a curve ball in life, I will do what ever I can to support them. With that being said please read below and help me support my good friend Racquel <3

2017 was a big year for me–new career, new job, new medical diagnoses. As my education to become a Physician Assistant came to a close and the biggest exam of my life approached, I was diagnosed with Ulcerative Colitis and Primary Sclerosing Cholangitis. While the earlier part of 2017 was full of lab work, procedures, imaging, medications, and doctors appointments, the latter was full of a drive to live a life I love, and live it powerfully. While working in the Emergency Department in The City of Brotherly Love has been full of rewarding moments, taking a stand and becoming an advocate for rare diseases has become increasingly important to me. Join me, move your bodies, and support these thousands of diseases!

This February, I am joining NORD’s Rare Movement Campaign to raise awareness for rare diseases. Together, participants aim to move a total of 7,000 miles of donor-supported movement by Rare Disease Day on February 28th. There are 7,000 known rare diseases, 95% of them have no treatment. Help NORD continue to support the 30 million Americans affected by rare diseases through patient assistance and support programs, research grants, advocacy and educational initiatives.

Schedule

DateNamemilesEarned
2/1Day 14.77$3
2/2Day 212.61$9
2/3Day 37.68$5
2/4Day 48.57$6
2/5Day 59.05$6
2/6Day 62.67$2
2/7Day 78.04$6
2/8Day 813.66$10
2/9Day 94.24$3
2/10Day 1010.51$7
2/11Day 114.74$3
2/12Day 1211.09$8
2/13Day 134.86$3
2/14Day 149.48$7
2/15Day 1510.89$8
2/16Day 168.83$6
2/17Day 179.43$7
2/18Day 186.12$4
2/19Day 194.21$3
2/20Day 203.82$3
2/21Day 218.57$6
2/23Day 2211.01$8
2/23Day 237.82$6
2/24Day 248.14$6
2/25Day 252.96$2
2/26Day 2610.91$8
2/27Day 274.69$3
2/28Day 288.10$6

This campaign benefits

National Organization for Rare Disorders

Verified Charity

NORD is a 501(c)(3) nonprofit organization formed as a federation of voluntary health organizations dedicated to helping people with rare orphan diseases and assisting the organizations that serve them. We are committed to the identification, treatment and cure of rare disorders through programs of education, advocacy, research and service.

Contributions made to this campaign are tax-deductible.

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