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Racquel's NORD 7,000 Mile Rare Movement: Rise Up for Rarity

Proceeds benefit National Organization for Rare Disorders

Completed

Based on 226 miles, each worth $4.61

Ended
17 pledgers

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I’m participating in NORD’s 7,000 Mile Rare Movement!

2017 was a big year for me–new career, new job, new medical diagnoses. As my education to become a Physician Assistant came to a close and the biggest exam of my life approached, I was diagnosed with Ulcerative Colitis and Primary Sclerosing Cholangitis. While the earlier part of 2017 was full of lab work, procedures, imaging, medications, and doctors appointments, the latter was full of a drive to live a life I love, and live it powerfully. While working in the Emergency Department in The City of Brotherly Love has been full of rewarding moments, taking a stand and becoming an advocate for rare diseases has become increasingly important to me. Join me, move your bodies, and support these thousands of diseases!

This February, I am joining NORD’s Rare Movement Campaign to raise awareness for rare diseases. Together, participants aim to move a total of 7,000 miles of donor-supported movement by Rare Disease Day on February 28th. There are 7,000 known rare diseases, 95% of them have no treatment. Help NORD continue to support the 30 million Americans affected by rare diseases through patient assistance and support programs, research grants, advocacy and educational initiatives.

[Optional: Add a link to your fitness tracker or app here.]

Schedule

DateNamemilesEarned
2/1Day 18.50$39
2/2Day 28$37
2/3Day 36$28
2/4Day 45$23
2/5Day 56.20$29
2/6Day 65.54$26
2/7Day 76.90$32
2/8Day 811.62$54
2/9Day 97.54$35
2/10Day 104.90$23
2/11Day 114.70$22
2/12Day 128.56$39
2/13Day 1310.87$50
2/14Day 145.46$25
2/15Day 157.46$34
2/16Day 166.74$31
2/17Day 176.80$31
2/18Day 185.72$26
2/19Day 196$28
2/20Day 2027.43$127
2/21Day 2110.73$49
2/23Day 2212.16$56
2/23Day 237.38$34
2/24Day 245.06$23
2/25Day 254.88$23
2/26Day 268.49$39
2/27Day 277.68$35
2/28Day 2810$46

This campaign benefits

National Organization for Rare Disorders

Verified Charity

NORD is a 501(c)(3) nonprofit organization formed as a federation of voluntary health organizations dedicated to helping people with rare orphan diseases and assisting the organizations that serve them. We are committed to the identification, treatment and cure of rare disorders through programs of education, advocacy, research and service.

Contributions made to this campaign are tax-deductible.

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