Kevin's NORD 7,000 Mile Rare Movement

Imagine being diagnosed with something you’ve never even heard of. To make matters worse, your doctor may never have heard of your condition until you came along. If that’s the case, you are going to need a ton of support to find one of the few experts in the world, explore treatment options, including clinical studies, and to find the answers you need. The National Organization of Rare Diseases (NORD) is there to help.

This February, I am joining NORD’s Rare Movement Campaign to raise awareness for rare diseases. Together, participants aim to move a total of 7,000 miles of donor-supported movement by Rare Disease Day on February 28th. There are 7,000 known rare diseases, 95% of them have no treatment. Help NORD continue to support the 30 million Americans affected by rare diseases through patient assistance and support programs, research grants, advocacy and educational initiatives.

I am joining the Rare Movement campaign because of the suffering I saw patients going through during my time developing drugs for rare diseases. I want to help give them hope. Please help by pledging to donate for each mile I track on my FitBit during the month of February.