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Kevin's NORD 7,000 Mile Rare Movement

Proceeds benefit National Organization for Rare Disorders


Based on 128 miles, each worth $3.55

4 pledgers

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I'm participating in the NORD's Rare Movement Campaign!

Imagine being diagnosed with something you’ve never even heard of. To make matters worse, your doctor may never have heard of your condition until you came along. If that’s the case, you are going to need a ton of support to find one of the few experts in the world, explore treatment options, including clinical studies, and to find the answers you need. The National Organization of Rare Diseases (NORD) is there to help.

This February, I am joining NORD’s Rare Movement Campaign to raise awareness for rare diseases. Together, participants aim to move a total of 7,000 miles of donor-supported movement by Rare Disease Day on February 28th. There are 7,000 known rare diseases, 95% of them have no treatment. Help NORD continue to support the 30 million Americans affected by rare diseases through patient assistance and support programs, research grants, advocacy and educational initiatives.

I am joining the Rare Movement campaign because of the suffering I saw patients going through during my time developing drugs for rare diseases. I want to help give them hope. Please help by pledging to donate for each mile I track on my FitBit during the month of February.


2/1Day 16.70$24
2/2Day 27$25
2/3Day 34$14
2/4Day 46$21
2/5Day 58$28
2/6Day 66$21
2/7Day 73$11
2/8Day 86$21
2/9Day 95$18
2/10Day 103$11
2/11Day 112$7
2/12Day 123$11
2/13Day 137$25
2/14Day 145$18
2/15Day 156$21
2/16Day 164$14
2/17Day 173$11
2/18Day 182$7
2/19Day 193$11
2/20Day 202$7
2/21Day 218$28
2/23Day 224$14
2/23Day 232$7
2/24Day 246$21
2/25Day 253$11
2/26Day 263$11
2/27Day 273$11
2/28Day 287$25

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This campaign benefits

National Organization for Rare Disorders

Verified Charity

NORD is a 501(c)(3) nonprofit organization formed as a federation of voluntary health organizations dedicated to helping people with rare orphan diseases and assisting the organizations that serve them. We are committed to the identification, treatment and cure of rare disorders through programs of education, advocacy, research and service.

Contributions made to this campaign are tax-deductible.

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