Jeannine's NORD 7,000 Mile Rare Movement: Team Metrum

This February, I am joining NORD’s Rare Movement Campaign to raise awareness for rare diseases. Together, participants aim to move a total of 7,000 miles of donor-supported movement by Rare Disease Day on February 28th. There are 7,000 known rare diseases, 95% of them have no treatment. Help NORD continue to support the 30 million Americans affected by rare diseases through patient assistance and support programs, research grants, advocacy and educational initiatives.

NORD helps bring awareness to thousands of rare diseases such as Amyloidosis. My mother has been affected by this disease for several years. It is my privilege to participate in this walk as we work towards better treatments and, hopefully a cure for Amyloidosis and many other rare diseases.