Angela Bhowmik's NORD 7,000 Mile Rare Movement

This February, I am joining NORD’s Rare Movement Campaign to raise awareness for rare diseases. Together, participants aim to move a total of 7,000 miles of donor-supported movement by Rare Disease Day on February 28th. There are 7,000 known rare diseases, 95% of them have no treatment. Help NORD continue to support the 30 million Americans affected by rare diseases through patient assistance and support programs, research grants, advocacy and educational initiatives.

Most of you know how close this cause is to my heart. Two of our three children have a rare disease. At least we know the name, Axenfeld Rieger Syndrome. That’s more than a lot of people know. And then what? There is no treatment. There is no cure. That is not enough. At least by supporting this organization, we can give others a chance to be supported in their rare disease journey.